Doreen Flynn

Doreen Flynn is a compelling example of the courage and determination parents must exhibit when their children are struck with a deadly blood disease. Doreen is from Lewiston, Maine, and is a single mother of five children—James, Jordan, Jacob, and twins Jorja and Julia. Jordan, Jorja and Julia have Fanconi anemia, a serious genetic disorder whose sufferers often need a bone marrow transplant in their teens. The Flynns’ story is one of love and tragedy. Jorja and Julia were conceived after Jordan was diagnosed with Fanconi anemia because Doreen desperately hoped they would be able to save their sister’s life someday by providing her with lifesaving marrow. But in a cruel twist, not only were the twins not a match, they too were also born with the same disease. Each of the girls will need a bone marrow transplant one day, and Doreen wants every option on the table to save her daughters. If more bone marrow donors were added to the pool, parents would not have to go to the lengths Doreen did in hopes of saving their children. Although we will never match everyone who needs a donor, adding substantially more donors to the rolls through incentives will without question save lives.

  • December 28, 2009    |   Other

    Bone Marrow—NOTA Challenge

    Saving Lives: Challenging the Federal Ban on Compensating Bone Marrow Donors

    Every year, nearly 3,000 Americans die because they cannot find a matching bone marrow donor.  Minorities are hit especially hard.  Common sense suggests that offering modest incentives to attract more bone marrow donors would be worth pursuing, but federal law makes that a felony punishable by up to five years in prison. That is why…

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